Tag: EDS

The Specialist

As you guys know, after a long process I had finally gotten into see the dysautonomia specialist at Vanderbilt. I was so frickin excited to meet with someone who understood this illness and worked with it daily! While the first visit went ok, there…

The Break Up

It’s been a while since I’ve written anything. Honestly, It’s been a rough couple of months. In June, my doctor dumped me. She had been my primary care physician for years. And although she wasn’t the one to diagnosis me, she led me to…

The Not Really an Update Update

My life has pretty much been completely taken over by health challenges since June, which if you follow my blog you know. But for months now, there had been a light at the end of the tunnel… an appointment at Vanderbilt, THE place to…

Disney with Dysautonomia

I’m fairly new to my diagnosis of hyper POTS and HSD, so the prospect of a Disney trip was almost as worrisome as it was exciting. Disney is know for its long wait times, and for a POTS patients standing for even a minute…