Tag: dysautonomia

The Specialist

As you guys know, after a long process I had finally gotten into see the dysautonomia specialist at Vanderbilt. I was so frickin excited to meet with someone who understood this illness and worked with it daily! While the first visit went ok, there…

The Not Really an Update Update

My life has pretty much been completely taken over by health challenges since June, which if you follow my blog you know. But for months now, there had been a light at the end of the tunnel… an appointment at Vanderbilt, THE place to…

Disney with Dysautonomia

I’m fairly new to my diagnosis of hyper POTS and HSD, so the prospect of a Disney trip was almost as worrisome as it was exciting. Disney is know for its long wait times, and for a POTS patients standing for even a minute…

The Diagnosis

June 22, 2018. That day will always be an defining one for me. On that day, I was diagnosed with Postural Orthostatic Tachycardia Syndrome, or POTS for short. For years I have experienced tremors, anxiety, rapid heart beat, lightheadedness, and extreme exhaustion. While none…