It’s been a while since I’ve written anything.
Honestly, It’s been a rough couple of months.
In June, my doctor dumped me. She had been my primary care physician for years. And although she wasn’t the one to diagnosis me, she led me to doctors who could, and fought to get me into see the specialist in Vanderbilt. So after my last appointment, I was almost out the door before I remembered to ask when to book a follow up. And there is was, “I don’t know. I’m always here, but I am rather useless to you.”
I left that appointment fuming! I didn’t understand what she meant, and why she wouldn’t say something along the lines of “I’m uncomfortable with the severity of your conditions.” It was simply “I’m useless to you.”
WHAT DOES ONE DO WITH THAT?! I had already had a horrific experience with the only local POTS specialist, and my current specialist is 500+ miles away, so seeing them more than once a year is unrealistic.
I decided that I needed to find a new primary care physician, that that was the best starting place. If I could find someone knowledgeable when it comes to POTS and EDS that would be an added bonus. So the search began.
Going through a list of doctors offices my physical therapist (Lori, she’s amazing) came up with for me, I called asking if they take new patients. And I was told I’m too old or that the practice isn’t accepting new patients over and over and over and over again. I then called in my mother, because quite honestly I couldn’t take another rejection. And a day later I had an appointment scheduled with a new family physician.
I’ve now seen her twice and she thankfully is comfortable with all my ailments. She’s also working with me to find a local cardiologist as my BP is back to being very unruly.
But that whole process took a toll mentally. I am still coming to terms with my illnesses. I am still learning what to expect. I am constantly learning my new limits. It has not been easy for me, so having a big part of my support network yanked out from under me was very unsettling. Luckily is was just a part though, and the rest of my wonderful supports held me up, and even helped me to rebuild. (Thx Mom and Lori)